by David Rosado | Jul 16, 2015 | 2015, Blog, July
AMY DOCKSER MARCUS Wall Street Journal Beyond medical literature; families’ experiences with rare conditions Doctors who treat children with rare conditions sometimes seek guidance from online chat groups where families relate their experiences with the disorders....
by David Rosado | Apr 7, 2015 | 2015, April, Blog
By STEVE LOHR www.nytimes.com Steven Keating’s doctors and medical experts view him as a citizen of the future. A scan of his brain eight years ago revealed a slight abnormality — nothing to worry about, he was told, but worth monitoring. And monitor he did, reading...